End-of-Life Care for People with IDD

Course Code: REL-IDD-AAIDD-ELCPIDD

Hours: 1

Type: Online Course

Content Expiration Date: 12/31/2024

Learning Objectives:
Provide a brief history of how dying has been treated in medical and at-home settings.
Describe a “good death” and the needs of individuals who are dying.
List 3 signs of approaching death.
Describe how you can support people with IDD as they experience grief and loss.
Describe how to make a plan for end-of-life care.
Define palliative care and hospice care.
Describe the scope of end-of-life planning documents.
Differentiate between competency and capacity
Describe how to use supported decision making to help people with IDD express their end-of-life wishes.
Describe the roles medical ethics and ethics committees play in end-of-life decision making.

Outline:
Section 1: Introduction

About This Course

Learning Objectives

Section 2: A Good Death

Life Expectancy

A Look Back

Death as a Medical Problem

What is a Good Death?

Spirituality

Grief and Loss

Importance of Ritual

Providing Supports that Match the Needs of the Person

Meet Molly

Redefining Hope

Reflection

Review

Summary

Section 3: Last Stages of Life

The Dying Process

Disability vs. Illness

Quality of Life

Signs of the End of Life

Treatment Decisions

What is Palliative Care?

What is Hospice?

Life Ceasing Situations

Review

Summary

Section 4: Communicating and Planning Ahead

Meet Edward

End-of-Life Care Plans

Legal Documents

Person-Centered Planning

Revisiting Edward

Supporting the Development of an End-of-Life Care Plan

Asking Healthcare Questions

Discussing Treatment

Location Preferences

How to Talk About Dying

Review

Summary

Section 5: End-of-Life Decision Making

Medical Decision Making

Informed Consent

Capable versus Competent

Supported Decision Making

Quick Check

Principles for End-of-Life Care

Paul: Transplant or Hospice?

The Role of Ethics Committees

Ethics and Capacity

Review

Summary

Section 6: Conclusion

Summary

Course Contributors

References

Congratulations!

Staff Writer: Katy Kunst, MBA, QIDP

Katy Kunst received her Bachelor of Arts in Psychology from the University of North Carolina at Chapel Hill, and her Master of Business Administration from Elon University. She has 15 years of experience serving people with intellectual and developmental disabilities and their supporters, including roles as direct support professional, program director, and training facilitator. She has created and facilitated training on topics including non-violent crisis interventions, person-centered planning, cultural competence, quality service delivery, regulatory compliance, and a variety of topics related to IDD services.

Instructor: Margaret A. Nygren, EdD

Margaret A. Nygren, EdD, is the Executive Director and CEO of the American Association on Intellectual and Developmental Disabilities (AAIDD). Prior to her work at AAIDD, she held positions at the Association of University Centers on Disabilities (AUCD), the Disabled and Elderly Health Programs Group at the Centers for Medicare and Medicaid Services (CMS). Dr. Nygren earned a Doctorate of Education in Organizational Leadership from Nova Southeastern University, a MA in Clinical Psychology from West Virginia University, and a BA in Psychology from Beloit College, and was named a Fellow of the AAIDD in 2018.

Target Audience:
The target audience for this course is: Direct Support Professionals; Nurses; Physicians; in the following settings: Intellectual Developmental Disabilities.

Relias Learning will be transparent in disclosing if any commercial support, sponsorship or co-providership is present prior to the learner completing the course.

Relias Learning has a grievance policy in place to facilitate reports of dissatisfaction. Relias Learning will make every effort to resolve each grievance in a mutually satisfactory manner. In order to report a complaint or grievance please contact Relias Learning at support@reliaslearning.com.

All courses offered by Relias Learning, LLC are developed from a foundation of diversity, inclusiveness, and a multicultural perspective. Knowledge, values and awareness related to cultural competency are infused throughout the course content.

To earn continuing education credit for this course you must achieve a passing score of 80% on the post-test and complete the course evaluation.

Course Delivery Method and Format
Asynchronous Distance Learning with interactivity which includes quizzes with questions/answers, and posttests.